Faith and Family: Navigating Special Needs Parenting

These sources collectively address the challenges and supports for Christian families raising children with disabilities. They highlight the emotional, spiritual, and practical difficulties faced by parents, including grief, loneliness, and the demanding nature of 24/7 care. The texts emphasize the role of faith and community in building resilience, offering spiritual encouragement through scripture, and fostering supportive relationships. Furthermore, they discuss disability theology as an academic field that promotes inclusion, challenges societal stigmas, and redefines concepts of perfection and purpose within a Christian framework, advocating for practical adaptations and genuine friendships within church settings.

Sadly, on this topic of inclusion in religious settings, I have a personal experience. You see, I was a student in a teacher’s education program, so I decided I would help with the younger youth group and later the vacation Bible school. In doing this I discovered that the pastor and former teacher and current preschool director did not have autism or behavioral issues. She felt that the best way to handle these children was to yell at them. I had even seen these children be judged and treated unfairly. That is not the worst part; it was not only her but also the family members of the other pastors. Well, autism and intellectual issues run in my family, so I then got the realization that I needed to speak out against discrimination and injustice. I was given the opportunity to have a group of children that had my 2 younger family members around. The one girl suffers sensory overload and mood dysregulation as part of her autism. From me having two children with the same issues, I was able to provide support and understanding to help her navigate the challenges she faces. Because I was often leaving my group with the other leaders to help her, I got evil looks and whispers behind my back. It was hurtful to see my dedication to helping her be met with judgment and negativity. Especially from pastors, I never expected my efforts to be met with such hostility from the people I thought were my friends. Of course I brought this up to her mom, and she said sadly this is what she experiences. at the church all the time with all the special needs people. While it is commendable that you provided support to a child in need, it is important to consider the impact on the rest of the group and ensure that your attention is balanced. It is also worth addressing any concerns or misunderstandings with the other leaders directly rather than assuming their motives.

Published by LKeller.

I am a mom, former nurse aide, full time student, and teacher's assistant. After learning that both my boys had autism, I became a huge advocate for all students and people with learning difficulties

Leave a comment